Update on Mary Anastasia

 

Hi Everyone,

I hope you all have had a wonderful Christmas Holiday!!  Just a small update on Mary’s MRI that we had done on December 22.  As we knew from when she was in the NICU, the left side of her Cerebellum was damaged and non functional.  However we did find out that the Grade 2 bleed that was in her brain came from the right side of the Cerebellum, due to the smaller than average size of  the right side.  We have an appointment on Friday to meet with a Neurologist to discuss what obstacles  Mary will face, and what challenges we will need to help her overcome in the next few years of her crucial development.

The doctors seem to be optimistic  that since she is a baby she will be able to re-train her brain in order to function.  We can already see this happening as she is able to grasp small objects, and feed herself.  Her fine motor skills are slowly developing, but they are.   I would like to thank everyone for all of the thoughts, prayers, and support that we have had over the years.  Have a great Holiday season.  Here are a couple of pictures I took during the Holidays.

~ The Deome’s

Mary Laughing

Last night we were talking and we heard a ripping noise.  We looked over and Mary had gotten a hold of a Fingerhut catalog…. She decided to have some fun.  Enjoy

~ The Deome’s

 

Update for Mary Anastasia

Hi Everyone,

I just wanted to give a small update on how Mary did yesterday.

Everything went perfectly well. After she fell asleep they put the IV in her, and 38 min later they had both eye muscles moved and re-stitched to the back of the eye. She woke up in a bit of pain so they gave her some pain meds, once the initial wake up period was over, they called us in to stage 2 recovery where mommy fed her some apple juice, and she slept on mommy for 1.5 hours. After they woke her up from that, she was blowing raspberries and smiling. Like nothing happened. Thanks for all of your thoughts and prayers.

This picture was taken after surgery.

Mary Rolls Over!!

Just 1 day after her 10-Month milestone, Mary rolls over for the first time on her own.  Yay Mary!!  Here is a video we would like to share with everyone.  Hope your weekend is going well.

Update on Mary Anastasia

Mary had a well checkup this week.  We have learned that she is now 15 pounds and 6 ounces.  She is getting so big.  Everything else is going well too, we’re working on her left eye, as it is a little weak, but her Eye specialist is very optimistic that everything will be fine after the surgery.   Here is a picture of Mary, I know I haven’t been updating the gallery as often, life has been hectic, with appointments, homework, and work.  More to come as I am going to start posting more.  Here is Mary trying to drive for the first time.

~ The Deome’s

Update Mary Anastasia

Hi Everyone,

I just wanted to update you all on Mary’s progress.  We have just come back from the Pulmonary appointment on Thursday the 28th, and they DC’d her Oxygen.  Our medical supply company just picked up the H tank today, we are not sad at all to see it go.  We are still attached to the apnea monitor for another month, but we have not seen a true apnea spell for about 2 months now.

Mary is doing very well, she has been amazing in showing us how much she fights to get better.   She is almost rolling over and loves to smile and laugh at her silly brother :).

I would like to thank everyone for your prayers and thoughts during the first 8 months of this year.  We’re not totally out of the woods yet, as Mary is starting PT/OT/and Speech therapy.

We love you all, as always here is a cute pic of Mary that we took recently.

~ The Deome’s

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