Christmas 2013

Merry Christmas,

Jen and I have been busy with Christmas, the move, and just living our new lifestyle to keep things updated.  I wanted to give an update on Mary’s health for everyone still tuned in on this blog.

Mary has started walking, she has been walking now for about 2 months, and is learning how to run now.  She likes to play chasing games, and just loves to jump and play on everyone.  Except Daisy.. she’s too grumpy for that.  We had a wonderful holiday, thank you to Grammie, Grandpa, and Bampa and Eva (my grandparents) for your gifts.  They have really helped this year.

Mary has also started saying the following words;

Yo/Hi/Bye/Mom/Dad/Bro/Uh ohh, and a few others.  She has really started to take off with her vocabulary, and movements.  We are so very proud of her.

Update for Christopher;

He has almost gotten straight A’s and B’s but has some trouble with science.  He is working very hard in school and it shows.  He celebrated his Christmas with a lot of skateboard equipment, and warm clothes.  He has been doing so good.  We’re extremely proud of his progress.


Enjoy the pictures, and I hope everyone has a happy and safe new year.  Enjoy!

~ The Deome’s

Easter 2013 Pictures

So this year Jen tried to come up with some really fun activities for Christopher and Mary.  We colored eggs with cool-whip, Kool-aid, food coloring, and eggs.  Can you imagine the mess?  More photos coming soon.  This is just a teaser of what’s to come.  Gotta run, we’re heading to the park this morning to take more photos, and to have some fun with the kids.  Hope you all have a great day!!

~ The Deome’s


Neurologist Update for Mary

Hi Everyone,

I wanted to post an update from our visit with the Neurologist.  Mary is considered to have Mild Cerebral Palsy.   This is a very light form although her MRI suggests a much more severe form.  We can’t see it, and the neurologist can’t either just from the quick exam and observation on Mary’s movements today.  She crawled, climbed up into her stroller, and even crawled to the exam table, sat up, and stood up at the edge with no help.  He was amazed that she was able to perform these functions with no assistance.  He is also very optimistic that with the right therapy  she will have a very normal day to day life.  Here is a link to understanding Mild Cerebral Palsy.

Things we’re going to be doing in the future are; speech, occupational, physical therapies, and specialist updates for each one every 6 months.   In a couple of weeks we’ll be doing an EEG as well, just to get a read of her brain.  I am sure Mary will respond well with these.   As you can see just a quick update on how well she is doing.  What a wonderful girl we have here.  Have a great weekend everyone!!  I am leaving you with a panoramic view of the St. Johns river and 1-10 :).

~ The Deome’s

Nemours View

Update on Mary Anastasia


Hi Everyone,

I hope you all have had a wonderful Christmas Holiday!!  Just a small update on Mary’s MRI that we had done on December 22.  As we knew from when she was in the NICU, the left side of her Cerebellum was damaged and non functional.  However we did find out that the Grade 2 bleed that was in her brain came from the right side of the Cerebellum, due to the smaller than average size of  the right side.  We have an appointment on Friday to meet with a Neurologist to discuss what obstacles  Mary will face, and what challenges we will need to help her overcome in the next few years of her crucial development.

The doctors seem to be optimistic  that since she is a baby she will be able to re-train her brain in order to function.  We can already see this happening as she is able to grasp small objects, and feed herself.  Her fine motor skills are slowly developing, but they are.   I would like to thank everyone for all of the thoughts, prayers, and support that we have had over the years.  Have a great Holiday season.  Here are a couple of pictures I took during the Holidays.

~ The Deome’s