Backyard Fun March 16th 2013

We spent some time outside with the beautiful weather we’re having today.  Enjoy the pictures!

~ The Deome’s

Neurologist Update for Mary

Hi Everyone,

I wanted to post an update from our visit with the Neurologist.  Mary is considered to have Mild Cerebral Palsy.   This is a very light form although her MRI suggests a much more severe form.  We can’t see it, and the neurologist can’t either just from the quick exam and observation on Mary’s movements today.  She crawled, climbed up into her stroller, and even crawled to the exam table, sat up, and stood up at the edge with no help.  He was amazed that she was able to perform these functions with no assistance.  He is also very optimistic that with the right therapy  she will have a very normal day to day life.  Here is a link to understanding Mild Cerebral Palsy.

Things we’re going to be doing in the future are; speech, occupational, physical therapies, and specialist updates for each one every 6 months.   In a couple of weeks we’ll be doing an EEG as well, just to get a read of her brain.  I am sure Mary will respond well with these.   As you can see just a quick update on how well she is doing.  What a wonderful girl we have here.  Have a great weekend everyone!!  I am leaving you with a panoramic view of the St. Johns river and 1-10 :).

~ The Deome’s

Nemours View

Update on Mary Anastasia

 

Hi Everyone,

I hope you all have had a wonderful Christmas Holiday!!  Just a small update on Mary’s MRI that we had done on December 22.  As we knew from when she was in the NICU, the left side of her Cerebellum was damaged and non functional.  However we did find out that the Grade 2 bleed that was in her brain came from the right side of the Cerebellum, due to the smaller than average size of  the right side.  We have an appointment on Friday to meet with a Neurologist to discuss what obstacles  Mary will face, and what challenges we will need to help her overcome in the next few years of her crucial development.

The doctors seem to be optimistic  that since she is a baby she will be able to re-train her brain in order to function.  We can already see this happening as she is able to grasp small objects, and feed herself.  Her fine motor skills are slowly developing, but they are.   I would like to thank everyone for all of the thoughts, prayers, and support that we have had over the years.  Have a great Holiday season.  Here are a couple of pictures I took during the Holidays.

~ The Deome’s