Mary’s NICU Journey

Hi Everyone.

Mary is thriving at home.  She hit the 5 pound mark on Friday.  That’s right, they don’t measure in grams anymore.  We have memorized the metric system in the past 3 months.  It’s going to be hard getting used to pounds and ounces again.

Please keep us in your thoughts and prayers, Mary is doing so well.  Thank you everyone for all that you have done.

I would like to thank Aunt Kini and  Uncle Ralph for Mary’s cute bunny.  It’s adorable, and we promise to make sure it’s safe here with her.

I would also like to thank my Grandparents, Bampa & Eva for their very generous gift.  Mary has all the diapers and wipes she could possibly need until the age of 1!!

I have put together a video of Mary’s NICU journey.  Have a great weekend everyone.

We love you all.

~ The Deome’s

Mary is HOME!

Yes, that’s right.  She is home as of Wed 4/20/2011 exactly 38 Weeks old.  First of all I can’t thank the Nurses and Doctors at Shands for all the excellent care and the piece of mind that they gave us.  We were able to leave her for half a day knowing that she is well taken care of.  Her primary nurse Shana, was excellent, and truly cared about Mary’s well being.

Jen and I are truly thankful for everyone that has kept us in their thoughts and prayers.  Please keep them coming.

Mary has come home with Oxygen, and an apnea monitor.  This is to keep us aware of her vital signs, and to let us know if she dips at all.  The doctors anticipate her to be on the Oxygen for about a month.

We love you all, thank you again for the continued support.  Have a great week.

~ The Deome’s

 

Christopher Holds Mary for the first time EVER!!!    CJD “You guys make great babies”

Grandma Mary holds Mary for the first time Ever!!!

Her primary doctor..  Dr. Felix!!

Her primary Nurse.. Shana!!

Mary Chillin’ with Mom

Front of the house today for the arrival!  Jen was surprised.

The mailbox :)

Update for Mary Anastasia – 4-12-2011

Hi Everyone,

I have the results of the MRI, and a few other things to share with everyone.  But first of all I would like to thank everyone for all your thoughts and prayers that we have received so far, and ask that you continue.

Mary’s feeding is at 42ml’s every 3 hours now, and her weight is …….  4 pounds 15.5 ounces.  That’s right, she is almost 5 pounds!!

She is now 37 Weeks old!!  Happy Birthday Mary!!

Mary’s brain bleed may have been the cause of some damage in her Cerebellum.  We still won’t know the extent of the damage until she hits certain milestones, such as walking, writing and so on.  They do feel confident that with this not being an option for use, Mary will learn to do these functions with the larger part of the brain, and train herself to not even try to use her Cerebellum.  We are positive she will overcome this, and amaze us as she does on a daily basis.  The rest of the MRI was free and clear of any other issues.

So far Mary has learned how to suck, swallow, and breathe while feeding with a bottle.  We have had a bit of a set back however, mostly due to the discharge process.  As they have pushed to get her feeding up there, and process 52ml’s of breast milk every 4 hours by bottle, Mary was getting too tired.  So with our concerns raised, and the PA’s concerns, they have backed her feeding to 42ml’s every 3 hours, or unless cued by Mary that she is hungry.   We have decided to let them know that after Mary has been on a bottle feed plan for 5 days straight with no residuals, and no choking issues, we can then start the process of bringing her home.

Bringing Mary Home Process:

1. CPR Class – passed

2. Car Seat Test – Not done yet

3. Feeding – Not done yet

4. Rooming in with Mary – Not done yet

We are getting closer, and closer every day, but we all need to stop, look and listen to what Mary is telling us.  Here are some pictures of our latest visits.  As always she has a bit more in her Gallery.  I have added a link to her gallery on the top right of the website.

Thank you everyone again for your support, we love you all.

~ The Deome’s