I hope you’re having a great week. We have some Deome news and some Taylor news today.
Yesterday around 10AM MST Roger Taylor, Jen’s father passed away. Please keep Jen and her family in your thoughts and prayers. This is a trying time for all of us. I would like to thank everyone for our support, but now I ask that you provide support for my other brothers and sisters on the Taylor side for their loss.
Mary is still off and on with the PD Flow nasal cannula. This is providing 24% Oxygen to her, however they keep trying to ween her from this, and she does very well in short bursts. at this time her tiny body doesn’t have enough reserve to make it past 24 hours. This will change, as her heart and lungs mature. We have to remember she has been on 3 different ventilators, and the PDA in her heart isn’t fully closed, so there is still some blood not getting the full benefits of the lungs work. More to come on this, as Dr. Felix is very optimistic that this will just take a couple more weeks to develop.
She is on 35ml’s of Mommy’s liquid gold every 3 hours and she is tolerating this very well. She is also having about 5 stools a day, and there are no signs of GI stress or stomach issues. They’re taking about removing the MCT Oil, and switching it up with a protein additive to help her grow muscles! She’ll be lifting weights in no time! Mary has been feeding from a bottle 1 time a day. Jen has been doing the handy work, and today Mary took 22ml’s by the bottle and did very well. Which brings me to my next update…..
She hit the 4 pound 1.5 ounce mark last night!!! Congratulations to our sweet daughter for making this milestone. She is still about 1 pound behind where she should be for her age. Speaking of age. Mary is now 35 Weeks old today!
Roger Taylor Jr, was in town for a convention yesterday, and had to fly home to Utah early to be with his family during these hard times, but before he left today, last night he drove 2.5 hours to meet us in Jacksonville so he could see his special niece. I have some pictures of the event, and tonight I leave you with them. Please keep us in your thoughts and prayers during these times. We hope you’re all doing well, we love you all.
~ The Deome’s
Roger visits Mary Anastasia @ UF & Shands in Jacksonville Florida
Mom feeding Mary, Mary holds up the I Love you sign!!
Mom and Dad hanging out with Sweet Mary.